Patients & Families
Family Education Day is an annual event designed to provide useful information to parents, spouses, and patients. With an informal tone, it allows families to receive education from CF providers and ask questions without the time constraints that occur during clinic visits. The subjects of the presentations change with each event, but recent topics have included managing health care benefits and patient assistance programs, lung transplantation, transition from pediatrics to adult care, and CF-related diabetes. Beginning in 2014, the education day for the Scottish Rite clinic was combined with the Emory+Children's event. This traditionally happens in the spring and our hope would be to base this program on requests from patients and families. We also have another event in the fall, which focuses more on the latest developments in the science of CF. We plan to record all presentations make them available online for patients to view, as they cannot attend due to infection control policies.