Family Advisory Councils
The Emory+Children’s Cystic Fibrosis Care Center is a CF Foundation-accredited center that is committed to delivering a positive patient and family care experience. The Center consists of three programs:
- The Emory+Children’s Pediatric CF Program at Egleston Hospital and North Druid Hills Clinic
- The Children’s Pediatric CF Program at Scottish Rite Hospital
- The Adult CF Program at Emory University Hospital and The Emory Clinic
The Center has established two patient family advisory councils, reflecting our pediatric and adult populations. These councils work in direct partnership with CF Center leadership and staff in achieving quality improvement goals. Below is an overview of the two councils as well as resources they have developed.
The CF Family Advisory Council is comprised of parents whose children receive their care at the Emory/Egleston or the Scottish Rite CF Foundation-accredited programs.
Family Advisory Purpose Statement: The purpose of the CF Family Advisory Council is to work together with staff to advance the practice of family-centered care. Family-centered care reflects the philosophy that healthcare providers and families are partners working together to improve the quality of care for patients. This is accomplished by designing better programs, policies, and procedures that provide the best possible care and meet the needs of the CF patient and their families.
For more information check out the Facebook page or see our newsletters:
The CF Patient and Family Advisory Council consists of adults with CF and caregivers (parents, spouses), who receive their care at the Emory Adult CF Foundation-accredited program.
Emory Patient and Family Advisory Council Mission Statement: The mission of the Emory Adult Patient and Family Advisory Council is to collaborate with the Emory Healthcare team to improve the clinic, hospital and outpatient care experiences of adult Cystic Fibrosis patients and their families.
To see accomplishments of this group, click here and see page 2.
For more information check out the Facebook page.
The resources below were developed by the family advisory councils based on their experiences. Each patient is different and specific care plans may vary at the expertise of a doctor and trained care team. While carefully made, these documents should not be considered the only standard of care of persons living and thriving with cystic fibrosis.