Linda P Riley, PhD, RN
Director of Nursing/Evidence Research
Children’s Healthcare of Atlanta
My program of nursing research focuses on the study of supportive care and end of life issues including parental grief, personal growth and positive change. Several studies explored quality of life of families caring for late stage cancer patients, and examined variables related to coping including burden, anxiety, depressive symptoms and grief response.
A current pilot study examines the unique needs of pediatric cancer survivors and their parents who are transitioning from active treatment. Factors related to quality of life of survivor and parent including resilience, optimism and uncertainty will be examined as the basis for creation of supportive interventions to bridge successfully to routine survivorship care.
Using a transition theoretical framework, my research study of parental grief explored personal and situational variables that impact how individuals cope with loss included assessment of positive outcomes of personal growth and positive change in bereaved parents.
My program of nursing research includes clinical outcomes within the scope of nursing practice for families dealing with end of life concerns. Two studies involved families caring for late stage cancer patients, and examined burden, quality of life, coping, depressive symptoms and grief response.
Provision of supportive care for cancer survivors and their families continues to be an interest.
Discussions with the survivorship research team about potential studies include exploration of strategies to engage pediatric cancer survivors and their parents in long term follow up as they transition to young adults and are followed over time for late effects.